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University of Southern California
University of Southern California
USC Chan Division of Occupational Science and Occupational Therapy
USC Chan Division of Occupational Science and Occupational Therapy
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TRUST logo

TRUST

Transforming Research: Understanding Experiences in ASD, Stakeholders Working Together

Project Overview

The TRUST (Transforming Research: Understanding Experiences in ASD, Stakeholders Working Together) Project was grounded in the participation of four stakeholder groups including family members and caregivers, autistic self-advocates, clinicians and providers, and researchers, as well as three community partner groups, The Sensory Processing and Autism Network (SPAN), 5-Eleven Hoops, and Autism Speaks. The foundation of this project was informed by our prior and current ethnographic and phenomenological studies and sensory processing research programs. The primary objective of this project was to develop a sustainable capacity building alliance of stakeholders with expertise in sensory processing related to ASD to inform and impact research endeavors. This project had four major aims:

  • Aim 1: Establish a diverse alliance of self-advocates, family members and caregivers, clinicians and providers, and researchers.
  • Aim 2: Determine research priorities.
  • Aim 3: Produce resources and distribute recommendations.
  • Aim 4: Develop a plan for sustainability and examine long term impacts.

TRUST Project Groups.png

TRUST Project Groups

TRUST Project Team and Stakeholder Group Members

Project Team

Self-Advocate Stakeholder Group

Family Member/Caregiver Group

Clinician Stakeholder Group

Researcher Stakeholder Group

Community Partners

Project Accomplishments

Stakeholder Groups

Research Priorities

Narrative Stories from Stakeholders

National Conference

Funding

This project was funded by the Eugene Washington PCORI (Patient Centered-Outcomes Institute) Engagement Award Program (PCORI #19922-USC).