A Weekend Away

November 27, 2012
by Paula

School/Life Balance What are OS/OT?

Last weekend, I was able to take a break from the normal school and work schedule and go to one of my favorite places: San Luis Obispo. The weekend was so refreshing being able to engage in some of my most valued occupations and spend time with family and friends. I went to my favorite coffee shop and worked on letters for family and friends (this is a lost art, I encourage you each to try writing letters again — they are so much more personal than emails and texts 😉), was able to share special dinners with close friends, hiked some of the most beautiful coastal lines I have seen and was able to just relax in the presence of loved ones.

While I was there, I was also able to spend time with the family who first introduced me to Occupational Therapy. When I was in college, I took a part time job taking care of a little boy who has Spinal Muscular Atrophy (SMA). SMA is a neuromuscular disease which specifically involves the individual’s motor neuron function and results in muscle weakness and atrophy. Seeing the effect that occupational therapy services had on the little guy’s physical health and overall self efficacy was incredible to me and so I started volunteering at the outpatient clinic where he had his appointments. This family has become family to me and I am inspired by the experiences and frustrations I have shared with them in the struggles to receive necessary services and equipment. The thing is, this is a family full of innovative OTs. They are constantly modifying the environment to be more comfortable, accessible and supportive of their son’s success in the world. Despite the frustrations, they continue to keep a positive attitude and use the opportunities they have to educate care providers and other families of the approaches that work for them in caring for their child and allowing him to be a kid, regardless of the label of disability which is often placed on him. Currently, this little guy’s goals are to convince Santa to bring him a dog and a Wii U gaming system for Christmas.  😊 Read more about SMA.

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